Category: Nook News

Nook News

Endometriosis and Pregnancy

Endometriosis is often associated with infertility. Infertility does not mean you cannot get pregnant, but rather there is a delay in achieving pregnancy. It is technically defined as not achieving a “clinical pregnancy after 12 months or more of regular

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Nook News

How to Study a Research Study

We post a lot of links and references to research studies, but it can be difficult to interpret them. Even harder is determining how relevant those studies are. Here are a few things to consider as you look at research

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Nook News

The Aggravating Endometrioma

What are endometriomas anyway? Endometriosis is classified into three main types: superficial peritoneal endometriosis, deep infiltrating endometriosis, and endometriomas (see more about that here).  Endometriomas are ovarian cysts lined by endometriotic tissue and can be filled with blood (why they

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Nook News

Celiac Disease and Endometriosis

Much like thyroid disease and endometriosis, there are not many studies looking at an association between celiac disease and endometriosis. One study found the “risk of endometriosis in patients with [celiac disease] was 112/100 000 person” (Stephansson et el., 2011).

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Nook News

Keep Endometriosis Awareness Going

As we come to the end of endometriosis awareness month, those of us with endometriosis knows it doesn’t end in March. Raising awareness and fighting against misinformation is a constant effort. Please feel free to share links from the webpage.

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Nook News

The Personal Burden of Endometriosis

Last week we looked at the direct financial burden of endometriosis, including the loss of education, loss of productivity at work and home, and loss of income. Today we look at the personal burden of endometriosis- the altered relationships with

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Nook News

The Costly Burden of Endometriosis

Endometriosis has a powerful cost in terms of quality of life. However, there are financial costs as well. Financial loss can come from direct healthcare costs as well as loss of productivity. The estimated annual cost between those two in

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Nook News

Endometriosis Quick Facts to Share

What is endometriosis? Endometriosis is an inflammatory disorder where lesions similar to the lining of the uterus are located outside of the uterus. Endometriosis lesions have distinct differences from the lining of the uterus in both their form and function.

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Nook News

Chronic Pelvic Pain: More Than Endometriosis Alone

If you have chronic pelvic pain, endometriosis is likely- endometriosis is diagnosed in up to 80% of patients with chronic pelvic pain (Butrick, 2007). Endometriosis is bad enough, but it is frequently accompanied by other conditions that can cause chronic

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Nook News

Thyroid disease and endometriosis

There are not many studies looking into the association of endometriosis and thyroid diseases. One study found that Graves disease (hyperthyroidism) was associated with endometriosis, but hypothyroidism was not (Yuk et al., 2016). Another study did not show any increase

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Nook News

Is there an endometriosis Diet?

There is no one specific diet for endometriosis. No food, diet, or supplement will “cure” endometriosis, but it can help manage symptoms and is great for overall health and well-being. Your diet needs to be individualized to your specific needs,

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Nook News

Medication to Prevent Recurrence?

“Should I take medication to prevent recurrence of my endo?” There is no definitive answer to this question- it is an individual choice that should be discussed with your provider. However, evidence points to it not being needed if ALL

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Nook News

My experience with pelvic physical therapy

I had never heard of pelvic physical therapy when my doctor suggested it. I was both wary of what pelvic physical therapy would entail and how much it might help. Pain from endometriosis, especially pain that has gone on for

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Nook News

Planning for the future

Nancy’s Nook Facebook group was begun several years ago by me, Nancy Petersen, and I have been assisted very generously by several volunteers over the years. Those volunteers have devoted much time, knowledge, and effort to amass endometriosis education and

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Nook News

Fatigue with Endometriosis

Fatigue is a symptom of endometriosis and can be quite debilitating (Ramin-Wright et al., 2018). Taber’s Medical Dictionary (n.d.) defines fatigue as “an overwhelming sustained feeling of exhaustion and diminished capacity for physical and mental work.” Fatigue with an illness

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Nook News

Ehlers Danlos and endometriosis

Ehlers Danlos syndrome (EDS) is a connective tissue disorder that can affect skin, joints, and many tissues in the body by its effect on collagen (National Organization for Rare Diseases, 2017). There are not many available studies on any association

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Nook News

Table of Contents

Here is an updated Table of Contents: WHAT IS ENDOMETRIOSIS Endometriosis Overview Staging, “Minimal” Disease, and DIE ORIGIN THEORIES OF ENDOMETRIOSIS Origin Theories of Endometriosis More Evidence Against Reflux Theory of Origin APPEARANCES OF ENDOMETRIOSIS The Many Appearances of Endo

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Nook News

Endometriosis Getting on Your Nerves?

It really is! “Endometriosis lesions are known to be hyperinnervated” (Liu, Yan, & Guo, 2019). People with endometriosis have abnormal nerve growth and nerve fibers close to endometriosis lesions (Zheng, Zhang, Leng, & Lang, 2019). Pain with endometriosis is multifactorial,

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Nook News

A Look Back on 2020- Endometriosis Research

2020 has been…different (to say the least!). Despite the pandemic, multiple research articles on endometriosis have emerged that validate the patient experience and offer glimpses into endometriosis that may help better patient care in the future.  Most research studies conclude

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Nook News

The Importance of Rest

We wish you hope this holiday season- hope that you will find answers to your questions and relief for your pain. Hope that the new year will bring you joy and peace. With the holiday season in full swing, it

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A Letter to Providers from Two Endo Patients
Nook News

A Letter to Providers from Two Endo Patients

Two people with endometriosis wanted to share their story of how providers made a difference in their journey. Based on their experience, they share their thoughts on what healthcare can do to make a difference. A big thank you to

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Nook News

Endo Basics: What is endometriosis?

Endometriosis has some unique characteristics, and we continue to find out new things about it. Understanding exactly what it is and how it functions can help us make better sense of the symptoms we experience as well as guide our

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Nook News

Self-Care During the Holidays

Holidays can be fun and festive but can also be a source of stress for those dealing with a chronic illness.  It can be hard for friends and family to understand the pain and fatigue that makes it difficult for

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Nook News

Looking at surgery

Let’s face it. Surgery is scary. Whether it’s your first or your fifth. I think for those of us who have suffered for a long time, the unknown of “will they find anything, will it help, will it be worth

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Nook News

Sciatic Pain and Endometriosis

While endometriosis may not necessarily have to be on the sciatic nerve to cause similar symptoms, there have been some cases documented of that happening. Some symptoms could be: cyclical pain along the sciatic nerve (sciatica), back pain, gluteal pain

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Nook News

Symptoms- from typical to atypical

Endometriosis symptoms can vary widely in both presentation and severity. While endometriosis can present with “typical” symptoms such as chronic pelvic pain during menstruation, it can also present with symptoms not readily attributed to endometriosis. One example is sciatica type

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Nook News

Red Flags: Myths and Misinformation

There are several red flags of perpetual myths/misinformation to watch for when evaluating information about endometriosis. Here are a few to be aware of: “Hysterectomy is the definitive treatment for endometriosis.” Or variations of this theme: “Removing your uterus and/or

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Nook News

Endometriosis: But your tests are all negative?

by Nancy Petersen So often we get questions in our Facebook group about diagnostic studies for endometriosis. Patients are told repeatedly, your MRI/CT Scan/US/colonoscopy showed nothing, so you are disease free. Often they are told by family, friends, and doctors alike to

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Nook News

Endometriosis: Perilous impact on kidneys

By Nancy Petersen Yes, it’s a tough headline. But last year in Nancy’s Nook, we had 18 cases of hydronephrosis reported secondary to fibrotic compression of the ureter due to endometriosis. Four of those people lost kidneys- one of the

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