In this section you will find several resources to help you on your endometriosis journey. It includes a variety of topics including:
- links to articles, podcasts, videos, webinars, and other sources of information and advocacy
- information about navigating insurance
- links to topics specific for teens, infertility, pregnancy, and LGBTQIA+
- topics such as writing your personal medical history, things to pack for surgery/hospital, and so forth
- resources for those in the UK and Australia
- and more!
Try to think long term. You may be irritated at your doctor right now, but you will need someone to follow you medically. If your current doctor is going to be that person, you need to navigate a way to keep the relationship cordial.
A list of current medications and a concise medical history is good to have when visiting any provider. It can help assure that any pertinent information your provider might want to know is available. Here is an example of a brief but thorough medical history.
Why am I here? I’m not a doctor, not a nurse – have no medical degree whatsoever. By trade I’m a lawyer and a filmmaker and by necessity in the last few years, an activist. I’m here because we’re in a care crisis with endometriosis.
Endometriosis: The Patient Perspective (an AAGL presentation)
The WHAPPG has found that women are not treated with dignity, are not provided with sufficient information about their treatment options, and are not told about treatment side-effects appropriately when counselled about their gynaecological health.
Women who experienced 3 endometriosis symptoms concurrently lost a significantly greater number of employment hours because of absenteeism and presenteeism compared with those experiencing 1 or 2 symptoms (P < 0.001)