Table of Contents

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Here is an updated Table of Contents:

WHAT IS ENDOMETRIOSIS

  1. Endometriosis Overview
  2. Staging, “Minimal” Disease, and DIE
  3. ORIGIN THEORIES OF ENDOMETRIOSIS
    1. Origin Theories of Endometriosis
    2. More Evidence Against Reflux Theory of Origin
  4. APPEARANCES OF ENDOMETRIOSIS
    1. The Many Appearances of Endo
    2. Histology of Endometriosis
  5. LOCATIONS OF ENDOMETRIOSIS
    1. Locations of endometriosis
    2. Weird places endometriosis has been found
  6. BEHAVIOR OF ENDOMETRIOSIS
    1. Role of Estrogen Receptor-β in Endometriosis
    2. Progesterone Resistance in Endometriosis
    3. Leptin and its role in endometriosis
  7. MORE IN DEPTH ON ENDO
    1. Risks of Heart Disease, Perspective on Research

SYMPTOMS

  1. Symptoms
  2. Symptoms Based on Endometriosis Locations
  3. PAIN
    1. Introduction: Pain
    2. What influences pain levels?
    3. Pain Associated with Minimal Endometriosis
    4. Location of lesions and where pain is felt
    5. Pelvic Floor Dysfunction links
    6. Pain with Penetration
    7. Brokengirl: The secret shame of chronic pelvic pain and the unseen consequences of our current care paradigm for endometriosis care
    8. Sciatic Pain and Endometriosis
    9. Nerves and endometriosis
  4. SEXUAL FUNCTIONING
    1. Pain with Penetration
    2. Post coital bleeding
  5. BOWEL GASTROINTESTINAL
    1. Bowel/GI endometriosis
  6. FATIGUE AND INFLAMMATION
    1. Inflammation with endometriosis
    2. Inflammatory markers and endometriosis (CRP and CA-125)
    3. Fatigue in Endometriosis
    4. Response to a study on prostaglandins and bacterial growth in endometriosis
  7. INFERTILITY
    1. Fertility Issues
    2. Infertility links
  8. THORACIC (DIAPHRAGM)
    1. Thoracic Endometriosis
    2. Comments on Thoracic Endometriosis
  9. OVARIES
    1. Ovaries and Endometriomas
  10. URINARY (BLADDER, URETERS, AND KIDNEYS)
    1. Urinary System (Bladder, Ureters, and Kidney)
  11. OTHER
    1. Endometriosis Systemic Effects
    2. Immune System
    3. Adhesion Related Information
    4. Endometriosis and Exercise

DIAGNOSIS

  1. Surgery
  2. Ultrasound Use with Endometriosis
  3. Magnetic Resonance Imaging (MRI’s) and endometriosis
  4. Labwork and Blood Tests
  5. But your tests are all negative?
  6. Clinical diagnosis of endometriosis: a call to action- from AJOG

TREATMENT

  1. How is endometriosis treated?
  2. The Standard of Care is Not Sufficient!
  3. The Triad of Successful Endometriosis Treatment
  4. SURGERY
    1. Why Surgery
    2. Why excision is recommended
    3. Endometriosis Appearance and Location: Impact on Surgical Success
    4. The Cost Effectiveness of Surgical Excision of Endometriosis: an unpublished study
    5. Should laser vaporization and electrocoagulation of endometriosis be banned
    6. Robotic Surgery
    7. Adhesion prevention
    8. Pelvic Adhesions
    9. What to Expect in the Weeks After Skilled Excision Surgery
    10. Managing expectations pre-op and post op
    11. Bowel Endometriosis Surgical Treatment
  5. MEDICATIONS
    1. Pain Medications
    2. Hormonal Medications
    3. A Quick Guide to Pain Control
    4. Medication to Prevent Recurrence
    5. Effects of long term low estrogen states
  6. PHYSICAL THERAPY
    1. “Everyone should do Kegels” and other pelvic floor myths
    2. Physical Therapy Resources
    3. Pelvic Physical Therapy
  7. OTHER THERAPIES
    1. Pain Management
    2. Mental Health
    3. Alternative and Complementary Therapies
    4. Diet and Nutrition

RELATED CONDITIONS

  1. Adenomyosis
  2. Endometrial/Uterine Polyps
  3. Interstitial Cystitis/Bladder Pain Syndrome
  4. Pelvic Floor Dysfunction
  5. Fibroids (Leiomyomas)
  6. Polycystic Ovarian Syndrome (PCOS)
  7. Pudendal Neuralgia and Vulvodynia
  8. Pelvic Congestion Syndrome
  9. Occult Hernia
  10. Migraines and Endometriosis

RESOURCES

  1. Choosing your surgeon
  2. Managing the relationship with your current doctor
  3. Personal Medical History Template
  4. Things to pack for the Hospital
  5. Why Patients Have a Role to Play in Changing the Status Quo of Endometriosis
  6. Endometriosis: The Patient Perspective (an AAGL presentation)
  7. Giving Women Control of their Healthcare: from the APPG
  8. UK Resources
  9. Australia Resources
  10. PREPARING FOR SURGERY- PRE AND POST OPERATIVE
    1. Before Surgery
    2. After Surgery: What to Expect
  11. LINKS, VIDEOS, AND PODCASTS
    1. Articles and Website Links
    2. Podcasts and Videos
  12. INSURANCE AND FINANCES
    1. Tips for Dealing with Insurance
    2. Insurance: Tricare
    3. Lack of Surgery Reimbursement in the US
    4. Endometriosis affects absenteeism and presenteeism
  13. INFERTILITY
    1. Infertility links
  14. TEENS
    1. Teens and Endometriosis
  15. PREGNANCY
    1. Pregnancy and Endometriosis
  16. LGBTQIA
    1.  LGBTQIA+ Resources
    2. Transgender and Endometriosis Studies

FREQUENTLY ASKED QUESTIONS

  1. Is there a link between heart disease and endometriosis?
  2. What effects can long term low estrogen cause?
  3. Can endometriosis persist after hysterectomy/ovary removal
  4. Is There Microscopic or Occult Endometriosis
  5. Is endometriosis an autoimmune disease?
  6. Does endometriosis increase my risk of cancer?
  7. Myths and Misinformation

PATIENT STORIES

  1. Barriers to Care
  2. Endometriosis: A Husband’s Perspective
  3. Endometriosis is so much worse than a bad period
  4. Study on the “Impact of endometriosis on women’s lives”
  5. Parenting is Hard, Even Harder with Endometriosis
  6. Coping with Endometriosis