Dysmenorrhea was diagnosed in 35 transmasculine persons. Mean age was 14.9 years ± 1.9 years. Twenty-nine (82.9%) were diagnosed after social transition.
A word from Nook Admins: We recognize, embrace, and celebrate the diversity of sex, genders, and sexual orientation in the endometriosis community.
Endometriosis is often associated with infertility. Infertility does not mean you cannot get pregnant, but rather there is a delay in achieving pregnancy.
Endometriosis, even deep infiltrating endometriosis, can affect teenagers. Saridogan (2017) reports that endometriosis is a common in teens who have chronic pelvic pain,
Nancy’s Nook is devoted to the individual with endometriosis. Some have fertility questions and concerns.
Women who experienced 3 endometriosis symptoms concurrently lost a significantly greater number of employment hours because of absenteeism and presenteeism compared with those experiencing 1 or 2 symptoms (P < 0.001)
If you have Tricare Prime you will need a referral to see a Gynecologist for pelvic pain. If you are at a base that has a Gynecologist it will be harder to get expert care.
Insurance policies are all different, so please be sure to check with your own policy documents in addition to using these tips.
Below are several links to articles and websites to help you learn more about endometriosis.
Recovery can take a while and looks different for everyone. For most people with endometriosis, they have suffered with symptoms for many years.
Surgery can be scary, but being prepared can help. Below you will find some resources to help you prepare:
After surgery, you may not be told about your surgery findings at discharge. When you are discharged, you will often be told you are no longer under “their care” as an inpatient, which means the day unit’s care.
The WHAPPG has found that women are not treated with dignity, are not provided with sufficient information about their treatment options, and are not told about treatment side-effects appropriately when counselled about their gynaecological health.
Endometriosis: The Patient Perspective (an AAGL presentation)
Why am I here? I’m not a doctor, not a nurse – have no medical degree whatsoever. By trade I’m a lawyer and a filmmaker and by necessity in the last few years, an activist. I’m here because we’re in a care crisis with endometriosis.
A list of current medications and a concise medical history is good to have when visiting any provider. It can help assure that any pertinent information your provider might want to know is available. Here is an example of a brief but thorough medical history.
Try to think long term. You may be irritated at your doctor right now, but you will need someone to follow you medically. If your current doctor is going to be that person, you need to navigate a way to keep the relationship cordial.
Contemplating excision surgery is a big step, but an even bigger one is hiring the surgeon you’ll use. You know that the typical OB/GYN isn’t the best candidate, and you’ve scoped out the list of member-recommended surgeons on Nancy’s Nook